Archive for the 'Forum Watch' Category

I Thought I Was Tough…..

Monday, June 5th, 2006

…but susan400 is a lot tougher than me, or you for that matter.
My first treatment was in 1997. I’ve been trying various treatments with periodic breaks off since then. Somewhere on here listed is all the various treatments that I’ve tried over the years. But, for the newbies who don’t know: I’ve tried, Intron-A/Riba (1st […]

Skipton Fund Appeals - New Group

Thursday, April 13th, 2006

A new group for those having problems with the Skipton Fund appeals process has been set up, worth a look if you fall into this group although to be fair not many do judging by the groups activity level. http://groups.google.com/group/Appealers
The Skipton Fund was set up to make “goodwill” payments to those who were likely to […]

That Old Chestnut Revisited, Alcohol and Hep C

Wednesday, March 29th, 2006

Interesting discussion at Ron’s forum regarding the safety of alcohol when you have hep c. Of note largely because of Nick’s comment which, for me at least, really nails the issue.
the only thing worse than not having a drink is having to stop after one!!
Source

Can You Catch Hep C From Snorting Cocaine?

Thursday, March 23rd, 2006

Yes, sort of……..
The doctor has every single confidence in the world that this is EXACTLY HOW I CONTRACTED HCV.
I have had this disease for approximately 25 years. In the 80s I NEVER used a needle. I was a “rock star” (in my mind I guess) and we NEVER ran out of coke - when we […]

A Cure for Riba Rash?

Monday, March 20th, 2006

Riba rash is little tiny bumps that start out very very small and then begin to itch as if you have chickenpox. in fact that is what I think of them as. If you itch them alot they can get infected and then scar. Yuck that is what happened to me.
I found that using a […]

PEG-Intron, Pegasys and Infergen: Whats The Score?

Wednesday, March 15th, 2006

Great post over at Janis & Friends, all you need to know about Interferon and trust me in the Hep C game you need to know about Interferon.
What is Interferon?
Interferons (IFNs) are natural proteins produced by the cells of the immune systems in response to viruses, bacteria, parasites and tumor cells.
Interferon is produced and released […]

Switching to Daily Infergen AKA This is Hardcore!

Wednesday, March 15th, 2006

Over at Ron Metcalfe’s forum member surf_2000 is very kindly detailing what happens when you do 43 weeks of pegulated interferon and find it is not working. In surf’s case you just switch on the fly to *daily* infergen injections, that my friends means that our surf is one determined and tough individual.
Read all about […]

New Section - Forum Watch

Wednesday, March 15th, 2006

A compilation of the good, the bad and the ugly from around the Hepatitis C online forum world. Hopefully you will find the postings as interesting as I do.
Watch this space :)