Comments on: Some You Win, Some You Draw…. http://www.hepcboy.com/archives/hepatitis-c/55 Tue, 13 May 2008 09:46:53 +0000 http://wordpress.org/?v=2.5 Comment on Some You Win, Some You Draw…. by: Rafael http://www.hepcboy.com/archives/hepatitis-c/55#comment-1523 Tue, 07 Nov 2006 20:32:43 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-1523 This note is for all readers that had viewed comments from sorebones. When this letter was written, I had just found that I had Hep C and I was feeling sorry for myself. I was (am) angry but there's nothing anyone can do about it. Please forgive me for the hostility I must have come across with. When the letter was posted, I had more bad feelings than ever. Now (Nov 06) I am in the 10th of therapy and still doing well, so far. Again I say to everyone, I AM SORRY FOR MY IGNORANCE, please forgive me. Thanks This note is for all readers that had viewed comments from sorebones. When this letter was written, I had just found that I had Hep C and I was feeling sorry for myself. I was (am) angry but there’s nothing anyone can do about it. Please forgive me for the hostility I must have come across with. When the letter was posted, I had more bad feelings than ever.
Now (Nov 06) I am in the 10th of therapy and still doing well, so far.
Again I say to everyone, I AM SORRY FOR MY IGNORANCE, please forgive me. Thanks

]]> Comment on Some You Win, Some You Draw…. by: Hep C Boy http://www.hepcboy.com/archives/hepatitis-c/55#comment-206 Fri, 03 Feb 2006 14:09:22 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-206 Good to hear from you again Jimmy! Week 7 already, boy time flies. I would say week 7 and 8 and maybe 9 were my worst so far, I hope things improve from here on in for you too. Good to hear from you again Jimmy!

Week 7 already, boy time flies. I would say week 7 and 8 and maybe 9 were my worst so far, I hope things improve from here on in for you too.

]]> Comment on Some You Win, Some You Draw…. by: Jimmy Lyn http://www.hepcboy.com/archives/hepatitis-c/55#comment-193 Mon, 30 Jan 2006 14:42:27 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-193 You will be in my prayers. Please let us know how it goes. Week 7- I had a good weekend, slept friday noon til Saturday AM. Then had to be up and alive to coach basketball and to take my children to a football game. I had a good time as all 6 were there along with my brothers children. After the game I took my Saturday PM shot and again slept until Sunday night. I was able to eat a little and sleep again Sunday night until Monday morning. I am feeling better than last week, even the pneumonia symptoms seem better. I am going to try to take it easy this week and stay rested. I hope I can find a way to eat better also. I just don't have much desire for food right now. I should have a lab report this week and I look forward to that being good news. Keeping the Faith ! You will be in my prayers. Please let us know how it goes.

Week 7- I had a good weekend, slept friday noon til Saturday AM. Then had to be up and alive to coach basketball and to take my children to a football game. I had a good time as all 6 were there along with my brothers children. After the game I took my Saturday PM shot and again slept until Sunday night. I was able to eat a little and sleep again Sunday night until Monday morning. I am feeling better than last week, even the pneumonia symptoms seem better. I am going to try to take it easy this week and stay rested. I hope I can find a way to eat better also. I just don’t have much desire for food right now. I should have a lab report this week and I look forward to that being good news. Keeping the Faith !

]]> Comment on Some You Win, Some You Draw…. by: Elizabeth Anne http://www.hepcboy.com/archives/hepatitis-c/55#comment-191 Mon, 30 Jan 2006 14:23:01 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-191 Good Luck. You are in my thoughts and I'm sending positive vibes. Good Luck. You are in my thoughts and I’m sending positive vibes.

]]> Comment on Some You Win, Some You Draw…. by: johnathon http://www.hepcboy.com/archives/hepatitis-c/55#comment-189 Mon, 30 Jan 2006 11:38:35 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-189 Yeah good luck for tommow Hep C fella, we most certainly are all behind you and will be thinking of you as always :) Yeah good luck for tommow Hep C fella, we most certainly are all behind you and will be thinking of you as always :)

]]> Comment on Some You Win, Some You Draw…. by: Hep C Boy http://www.hepcboy.com/archives/hepatitis-c/55#comment-187 Mon, 30 Jan 2006 00:08:49 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-187 Thanks for the kind words and great advice. Off to the lion's den tomorrow, I will be appearing as Daniel :) Thanks for the kind words and great advice.

Off to the lion’s den tomorrow, I will be appearing as Daniel :)

]]> Comment on Some You Win, Some You Draw…. by: Martin B http://www.hepcboy.com/archives/hepatitis-c/55#comment-186 Sun, 29 Jan 2006 23:42:36 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-186 The plan is all very well while it fits the path of accepted treatment options, but there comes a time when the consultant's best laid plans are exhausted, and any future moves may be along the lines of you laying down a strategy for him! Get him to throw the book of plans away. I would suggest that before he abandons you into the vast empty void labelled 'non responders' he runs one more viral load, and keeps you on treatment until the result comes back. If this comes back as very low indeed, or undetectable it may be worth continuing, possibly for longer than normal treatments as a result is still possible. You would be a slow-responder rather than a non-responder. If the V/L is up on your last figure, or has not dropped appreciably you will have to face the fact that the current treatment is not going to work. So where then? Well different interferons give different responses in different people. There is a fighting chance that switching makes will get a result as it has for me and many others. In an ideal world, switching immediately and monitoring V/L for a month would be the chosen course. A big drop or undetectable would make it worthwhile carrying on for another 24 weeks. Alternatively, take a treatment holiday, recover, and try again with the different type. This is all outside the guidelines, so what chance you have of getting the consultant to play ball is in the lap of the gods. Take a good look at Surf2000's recent posts on the forum. He switched mid-stream and the V/L's look promising. Failing all this, you end up in the queue for VX-950 or whichever of the new generation drugs proves most effective. You have almost certainly bought enough time to make it to that point without serious damage. Stay positive, and make sure the consultant does as well! Martin The plan is all very well while it fits the path of accepted treatment options, but there comes a time when the consultant’s best laid plans are exhausted, and any future moves may be along the lines of you laying down a strategy for him! Get him to throw the book of plans away.
I would suggest that before he abandons you into the vast empty void labelled ‘non responders’ he runs one more viral load, and keeps you on treatment until the result comes back. If this comes back as very low indeed, or undetectable it may be worth continuing, possibly for longer than normal treatments as a result is still possible. You would be a slow-responder rather than a non-responder. If the V/L is up on your last figure, or has not dropped appreciably you will have to face the fact that the current treatment is not going to work.
So where then? Well different interferons give different responses in different people. There is a fighting chance that switching makes will get a result as it has for me and many others. In an ideal world, switching immediately and monitoring V/L for a month would be the chosen course. A big drop or undetectable would make it worthwhile carrying on for another 24 weeks. Alternatively, take a treatment holiday, recover, and try again with the different type. This is all outside the guidelines, so what chance you have of getting the consultant to play ball is in the lap of the gods.
Take a good look at Surf2000’s recent posts on the forum. He switched mid-stream and the V/L’s look promising.
Failing all this, you end up in the queue for VX-950 or whichever of the new generation drugs proves most effective. You have almost certainly bought enough time to make it to that point without serious damage.
Stay positive, and make sure the consultant does as well!
Martin

]]> Comment on Some You Win, Some You Draw…. by: Carol http://www.hepcboy.com/archives/hepatitis-c/55#comment-185 Sun, 29 Jan 2006 23:05:39 +0000 http://www.hepcboy.com/archives/hepatitis-c/55#comment-185 Good luck for tomorrow, we are all behind you. Good luck for tomorrow, we are all behind you.

]]>