Comments on: Hepatitis C Treatment - 47 Weeks and Counting

By: Rob

Rob — Tue, 11 Mar 2008 19:30:26 +0000

I have hep c geno 3 I am starting treatment in june of 2008 I was thinking of doing a blog or web page like you. Would you get mad if I used a site call Hepcboy2 or something like that? I would also like to link to your site So people can find my site. I will pretty much do the same as you and just let people know how I feel during this treatment time. If i do this I just hope people will find it and maybe help some people worried about what is going to happen to them. Your site has really help me to know what I got in store for me. What do you think?

By: the craze

the craze — Fri, 23 Feb 2007 23:11:19 +0000

you know this site is pretty humorous no kidding.
sure wish i would have been vibe last year when the pegasus and all the other shit i was taking that made me look like and feel like death not that i want to go back.
really.
everybody here seems so happy.
hope to kill this thing that came back in the millions again but no flags
sure hope it stays that way till i get killed or something
maybe it’s the shitake that’s keeping it on the norm
or maybe the weed
or maybe the beer and pretzels
only one a night though
hang in dere

By: C-blast

C-blast — Sat, 23 Dec 2006 17:22:45 +0000

Hey C boy.
No doub’t this virus is tough.
I went through the 48 weeks and now the loas is starting to climb again.
What is vx950?

Just looking for an alternate…………………….

By: Hep C Boy

Hep C Boy — Wed, 04 Oct 2006 19:04:09 +0000

Hi Thinkaboutit, thanks for raising a good point for discussion. My view is simple, particulary in the age of the Internet, information wants to be free and will always find a way to be so. The medical establishment needs to accept and address this, not pretend it doesn’t happen. It is peoples natural instinct to get as much information as they can and they will.

By: Thinkaboutit

Thinkaboutit — Wed, 20 Sep 2006 20:42:34 +0000

A parabole based on an acutal occurrence.

Once upon a time, a good doctor helped conduct research for new drugs. He had a private practice, but once a week, he saw study patients in the afternoon.

Eventually, the patients in the waiting room realized they were all involved in the same randomized, double blinded, placebo controlled study. Then one got an idea.

“If I’m on the study drug and you’re not, we mix both our study drugs together and we each should get some of the drug.”

“What a noble idea”, said the other. And they both mixed their pills together and then divied them up between them.

Soon, everyone was doing their own thing, mixing and sharing the pills with each other so that everyone would get a response.

But one day the doctor came out and saw what was happening and was shocked and dismayed. He called the pharmaceutical company, that then had to throw out all the data he had collected regarding side effects, patient response, and overall general health. His site was discontinued from the trial for major protocol violations related to the participant conduct. He would not be recommended as a study site again.

The pharmaceutical company then had to go to the FDA and report what happened. The FDA responded that without these patients, their study was under-powered and could not be used to determine if the drug was safe or effective.

The pharmaceutical company had to scrap the whole study and start anew. It cost millions of dollars to re-do the whole study.

And that is why AZT took so long to get to market.

There’s a reason why studies are blinded–it’s to prevent patient/doctor/ pharmaceutical company bias that would skew the data and may either over-hype a drug as safe when it’s not, or under-hype a drugs effectiveness when it is.

Thinkaboutit NM Girl before you disclose pharmaceutical company trade secrets.

By: Rafael aka: sorebones

Rafael aka: sorebones — Fri, 08 Sep 2006 01:22:50 +0000

I havew wrtten several tmes, and for ever reason the notes are not put in reply column. I just need to see for myself the issues I’m facing are not being done alone. To see people respond to your personal letter is more comforting than seeing others write and tell of their progress, at least for me at time time. That is since I’ve only recently cound I have hep C.

Sincerity to all of my fellow victums, And may you all have a quick and healthy recovery.

Rafael

By: Tracey, treacy,tracey

Tracey, treacy,tracey — Fri, 01 Sep 2006 21:14:30 +0000

Life is good post SVR. I think the poison is out of my system now and apart from a touch of insanity pre post tx and post tx everything is fine now.

It is well worth it in the end people…keep it up

Tracey

By: NM girl

NM girl — Mon, 21 Aug 2006 17:51:08 +0000

I will gladly keep you posted. Friday is day 1 when I’ll spend 5 hours at UNM with lots of tests and a loading dose of drugs. Is loading on the first day something that happens with the standard treatment?

BTW - thanks for your sense of humor, too!

By: Hep C Boy

Hep C Boy — Sun, 20 Aug 2006 13:47:48 +0000

Hi NM girl! As I’m sure you know everybody is excited by the potential of vx-950, any info you can share would be much appriciated.

Hi Terry, sounds like you are easily amused or the only one to get the Lou Gehrig joke

Tracey, treacey, tracey. Nice to hear from you again, how is life post SVR?

By: Tracey

Tracey — Sat, 19 Aug 2006 20:56:04 +0000

Glad to hear your doing well

Keep it up. You have a lot of grit and determination which I would imagine you would need doing 72 weeks.

All the best