Comments on: Coasting - Week 32 and 33

By: Terry

Terry — Thu, 24 Aug 2006 19:39:46 +0000

Hi sorebones. I’m sorry that no one has taken the time to write you, so being in the same Hep C boat, I want to. I started PegIntron and Rebetol combination therapy on May 26, ‘06 so that makes…how many injections?
My insurance gave me a scare by telling me that they won’t pay unless I had dropped two “logs”, whatever that means, and luckily I did. One of the major side effects I have nowadays (having been through the crazies, the temper tantrums, all alone I might add, 7 weeks on LOA at home alone) is fatigue. I have travelling pains, myalgia, and I feel like I’m moving in slow motion, but I did come back to work on July 24th and have only missed one day since. Hang in there, buddy. And I thought menopause was bad.

By: sorebones

sorebones — Mon, 24 Jul 2006 04:44:27 +0000

I have written numerous times, but to no avail. Aren’t the responses supposed to get some type of feedback? I want and need support jsut like everyone else. My wife id quazzy ok with it, but it’s me with the infection. How can I change my lifestyle to fit the new onset of problems that may or will arrise.

By: mamawood

mamawood — Fri, 12 May 2006 11:31:15 +0000

Hey this stuff is hard, my first treatment in 96 put me in the psych waed for a few days–they contacted yhe doctor
of all the stuff he was giving me when I was showing no thyroid to crazy high they took me off and the dr,disappeared from the clinic. 8 years later Itried again and dropped from 1,500,000 to under 600 after 3 months. stuff got so heavy I couldn’t even dial the phone fast enough before the operator told me to try again, platelets dropped to 40 hospitalized 3 times the last month almost lost it. I,m still here, some days are good others i stay in bed. I think the worst thing is doctors.

By: teddy

teddy — Mon, 08 May 2006 20:30:28 +0000

Good luck with the next pcr Hep c boy. I still have you to thank for re-directing my anger from the doctors and the world in general to the virus, that really helped so much.

All the best to you

Teddy

By: Chris

Chris — Thu, 04 May 2006 15:08:40 +0000

Congratulations on the bit of gamesmanship with the doc. I like the “consultant” terminology. It’s an accurate description of the nature of a proper relationship in this day of literate patients.

I’ve been following your progress since I started (Friday, January 13 appropriately enough). I’m now at Week 16 but won’t have a viral load check until Week 24. That’s a bit of gamesmanship on my doc’s part. He said some insurance companies refuse to pay for treatment if patients fail to achieve a log-2 drop. He wants all his patients to get at least six months on the juice.

Good luck with the continued treatment.

By: Deb

Deb — Wed, 03 May 2006 01:54:59 +0000

I just found this site, good work! I am on last quarter of my peg/rib. My last viral load was under 32. Then this one showed positive, but according to Doc, they ran qualitive pcr, instead of cummalitive. Which wasn’t what he wanted. So find out and he says of course it would show positive its much more sensative. So my panic subsided and I am breathing some what normally again. I have red palms for years, both specialist say don’t worry about it, then I read on line it’s last stages cirrocious. New Panic!

I think I also have had this disease over 25 years, no drug use, possibly a blood transfusion pre 85. Non drinker (now especially) I go through moments of panice and moments of doing my best to forget about it. I am faithful with shots and pills, my side affects haven’t been to bad, more emotional, then he gave me happy pills.
I am certainly babbling and I apologize just wanted to say, it is a good site, well done.