BANG, BANG, BANG!

Lets just recap. Meeting went well with my consultant, he went through all the options, 4 in total which was more than I thought there was but then again 2 involved quitting treatment I pushed for a switch in Interferon from PEGASYS (peginterferon alfa-2a) to PEG-INTRON (peginterferon alfa-2b), he said it wouldn’t make any difference, I agreed. The upshot of this was that I switched to PEG-INTRON, with his agreement of course. Again just to reiterate, very good meeting, relaxed, options explained carefully but most of all the feeling that, maybe especially with this type of treatment, it is very much patient led. I feel in my heart that if I had skipped a beat or blinked when he looked into the whites of my eyes I would have been off treatment. I’m not saying that they are looking for excuses to get me off treatment by any means but rather that the medical case for continuing becomes less tenable as each detectable PCR passes, they have to be convinced that there are physiological benefits for me continuing. That was really the main point of the meeting from my angle, to reinforce to the Doctor that when I say I am going to do something I do it, no excuses, no quitting, no backing down. Its important to me that we set that “Golden Rule” because lets be frank, the way things are going it looks like I will be seeing him quite a lot of him over the next few years.

Last week was the first of the new injections and well it was like starting all over again but much much worse. Felt better as the week has progressed and hopefully it will just be a case of getting used to the new drug and things will improve. To be honest it was the plan, I was hoping the switch would prompt something of a response and that it certainly did!

On the good news side my viral load came through at less than 615 copies, that is huge news for me and hopefully this new regime will force it down to undetectable.

I have a million and one other things to write about but to be frank haven’t got the time, you wouldn’t have the time to read it either

Your inspiration this week is……

You never win a game unless you beat the guy in front of you. The score on the board doesn’t mean a thing. That’s for the fans. You’ve got to win the war with the man in front of you. You’ve got to get your man.

- Vince Lombardi

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