Comments on: My Hepatitis C

By: liz

liz — Fri, 30 Oct 2009 22:23:41 +0000

I went into the hospital for a one day surgery = something went wrong - I was in a coma for almost a year , died three times- during this time i had a blood transfusion and got hepatitis c from it = wow - anyway I learned to walk, talk and do everything all over again after the coma - I fought to stay alive only to find I have a life sentence with hepatitis c - all i can say is
God has a reason for everything that happens in our lives - guess there is a purpose or reason for me having hepatitis c - I only wish I knew when my time would be up - hope to live a long life - in 1996 they said I had 10 to 15 years - during some test afterwards they found another liver disease - this site is great for sharing our stories and getting advice - what do you think - how long do you think I may live

By: Kelli

Kelli — Sun, 07 Sep 2008 18:37:15 +0000

So - My Mom told me had Hep C a few years age. She said she’s not sure where she got it, but I know she ejoyed the needles in my early stages of life so I assume. Eveyone here is talking about treatment, but I know she’s not doing any of that. Is treatment needed to live? What happens if someone with Hep c doesn’t get treatment? She recently has had to get a pace mker was diagnosed being Bi-polar and is going in for a biopsy because she was just diagnosed with arthitis of the veins. Is this brought on by Hep C?

By: Deb

Deb — Wed, 27 Aug 2008 15:33:32 +0000

I finally started treatment two weeks ago. I had been waiting a couple of years. On June 16th was my last entry, two week wait turned into a month not to bad I gather. Last Sunday night was my second injection. I was scared to death the first injection was horrible, I take the injection of Peg-intron about 8:00p.m. by about 2:00a.m. it hit hard. I also take 1,000mg rebetol a day, anyway if it helps anyone I called my doctor, which I am on a county program and he called in a sleeping pill called Restoril or Temazepam 30 mg, and a nasea medication called Prochlorper 10 mg. Well I didn’t feel anything this past Sunday night. I now feel like I can totally do this. I have the type 2 and will have treatment for only 24 weeks. I hope this helps, anyone doing treatment with just tylenol is pretty tough in my book.

By: Vin

Vin — Mon, 25 Aug 2008 20:20:30 +0000

Support is the best thing we can ask for. I have Chronic Hep C, Type 1
Diagnosed in January. The Doctor told me about pegasys (Interferon and Riboflavin (sp) ) I did a ton of research and found that those with the type I carry is the hardest to overcome. It is the most resistant type in regards to treatment. I was told there’s about a 50% chance it would work, and of that 50%, 1/2 of those would have to re-think the gameplan. Also after doing my own investigation I found that people with histories of diabetes, cancers, auto-immune psoriasis should not take the treatment. Because I’m not a Doctor I can only give what I found through independant sites and Government sites regarding Hep C.

I now take Milk Thistle and a variety of other herbs, including St. John’s Wort which helps the “woe is me” thing.

While there is no cure for this disease there are many people working on this epidemic. Some researchers have shown that they can use RF frequencies (check it out) and others are trying to do a better study on the effects of herbal remedies.

Herbs being the key word there. Many Doctors are more than reluctant to suggest herbs. (no money in it for them) Do yourself a favor and get as educated as you can on the subject of your disease. Knowing the enemy is half the battle.

Hope is there! Eat right, don’t drink, and learn to deal with pain management. I sense there will be a cure one day. . .and hopefully soon.

P.S. - I have no doubt in my mind the US Navy gave this to me through shots I received in basic training. I have never injected drugs and I am not a drinker.

By: Anonymous

Anonymous — Fri, 18 Jul 2008 13:45:31 +0000

thank the lord i live in uk then,,,this is my second time round and as ive posted everything is peachy. saw consultant yesterday my viral load has been undetectable since week 4, im on 48 wk this is week 12. i have the symtoms but very very mild. only had fever on the first night. and best of all is all medication and the beck up i was given before starting ie dietician.shrink, pysio. are all totally FREE..

By: Joseph

Joseph — Wed, 16 Jul 2008 18:22:49 +0000

Thanks for this Forum
I’m near 67 now. When you get Medicare at 65 you get 1 free checkup and mine disclosed Hep c. Upon the news a friend convinced me to get all the insurance supplements which are available for pre-existant conditions for just 3 months after 65. Thank God for friends. Further testing showed genotype 1A, viral load over 200 million and stage 4 cirrhosis. I’m at week 23 of Pegasys/Ribivarin treatment. At week 12 the vl was down to 284 and hopefully will be at zero by the 24 week test. If not its to be off the treatment, if so 24 more weeks. The treatment is awful, the first 8 weeks the worse - terrible body aches - some relief from Tylenol and hot water bottles. After that slightly less aches. Exteme fatique and skin you want to leave and an awful inability to concentrate or function - I’m fortunate to be retired and live only on ss payments - my out of pocket is about $6000 for the 48 week tx - about half of my ss. At that I’m lucky and want this sick country to give Medicare type coverage to all.

By: Deb

Deb — Mon, 16 Jun 2008 00:31:55 +0000

I was relieved to find this website. I start a 24 wk program in 2 wks and I am trying to find out what to expect. It already is helping to hear what it feels like to other people and what the different treatments are. I got the virus when I was 17 from my husband and IV drug use and he died at 42. The people that love me just say it will be okay but still I am really nervous, so I will be checking out this website. Deb

By: realguylondon

realguylondon — Fri, 06 Jun 2008 13:02:04 +0000

**UPDATE**
I RECIVED FIRST BLOOD RESULT TODAY AFTER 4 WEEKS OF NEW PEGASUS IVE CLEARED THE VIRUS…UNFORTUNATLY I STILL NEED TO DO ANOTHER 44 WEEKS BUT THUS FAR NO REAL SIDE EFFECTS, A LITTLE TIRED AND RESTLESS LACK OF APPITITE AND THATS ALL.
HOPE IT CONTINUES LIKE THIS I WILL LET YOU KNOW.

By: Brent geno 2a

Brent geno 2a — Sat, 10 May 2008 05:16:41 +0000

oh Yah.. I forgot to mention..
try dipping your toast in your coffee

for some reason you can always drink coffee

By: Brent geno 2a

Brent geno 2a — Sat, 10 May 2008 05:05:46 +0000

Hi I just found out in october that i have hep-c
I think i got it from on of 4 back operations that i had in 1986 to 1989..
I asked my doctor if that is how I got it but he said it is unlikely you would have had a transfusion for disk surgury.I sent for my medical records and will find out next week

If anyone knows what the genotype of the tainted blood victoms is it would be helpfull to know
my email address is bmclellan4@shaw.ca

my genotype is 2a. I have been in treatement for 8 weeks now.. the side effects are a nightmare

my adviise to anyone on treatement is to try to eat.. even if you do not feal like it